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Fibromyalgia

Overview

Fibromyalgia is a condition that causes widespread pain in your muscles and bones. It's often accompanied by tiredness, trouble sleeping, problems with memory, and changes in mood. Scientists think fibromyalgia makes your brain and spinal cord react more strongly to pain signals, even those that aren't normally painful. This is why someone with fibromyalgia might feel pain in areas that others don't.

Sometimes, fibromyalgia starts after a big event like an injury, surgery, illness, or a really stressful time. Other times, the symptoms develop slowly over a long period, without a clear starting point.

Women are more likely to get fibromyalgia than men. People with fibromyalgia often also experience tension headaches, problems with their jaw joints (TMJ), irritable bowel syndrome, and/or feelings of anxiety or depression.

There's no way to completely get rid of fibromyalgia, but there are many things that can help manage the symptoms. Doctors can prescribe medications to control the pain. Regular exercise, relaxation techniques, and ways to reduce stress can also help.

Symptoms

Fibromyalgia is a condition that causes widespread pain and other problems. Here's a breakdown of the main symptoms:

1. Widespread Pain: People with fibromyalgia experience a constant, dull ache. This pain has to have lasted for at least three months and be felt on both sides of the body, both above and below the waist. It's not a sharp, stabbing pain, but more like a constant, low-level soreness.

2. Extreme Fatigue: Even after long sleep, people with fibromyalgia often feel very tired. Their sleep can be interrupted by the pain, and they might have other sleep issues, like restless legs syndrome or sleep apnea, which can further contribute to this fatigue. This tiredness is different from the normal feeling of being tired; it's a persistent exhaustion that's hard to shake off.

3. Brain Fog: Fibromyalgia often makes it hard to concentrate and focus. This is sometimes called "fibro fog." It can make it challenging to remember things, pay attention to tasks, and think clearly. It's like your brain is having trouble processing information.

Other Conditions Often Linked to Fibromyalgia:

Fibromyalgia often appears alongside other health issues. These include:

  • Irritable Bowel Syndrome (IBS): This causes stomach problems like cramping, bloating, and changes in bowel habits.
  • Chronic Fatigue Syndrome (CFS): This is similar to fibromyalgia in that it also involves extreme fatigue.
  • Headaches (like migraines): People with fibromyalgia can experience frequent or severe headaches.
  • Painful Bladder Syndrome (Interstitial Cystitis): This is a condition that causes pain and discomfort in the bladder.
  • Jaw Problems (Temporomandibular Joint Disorders): These issues involve pain and stiffness in the jaw joint.
  • Anxiety and Depression: People with fibromyalgia often experience these emotional challenges, which can worsen the symptoms.
  • Postural Tachycardia Syndrome (PoTS): This condition causes a rapid increase in heart rate when standing up, which can be uncomfortable and exhausting.

It's important to note that these other conditions can also exist independently of fibromyalgia. If you're experiencing these symptoms, it's essential to talk to your doctor to get a proper diagnosis and treatment plan.

Causes

People with fibromyalgia may experience changes in their brain and spinal cord due to repeated nerve stimulation. This means their brains produce more pain-signaling chemicals than usual. Essentially, their brains and nervous systems become overly sensitive to both pain and non-pain sensations. It's like the pain receptors have developed a memory of pain, making them more easily triggered.

Several factors likely contribute to these changes:

  • Genetics: Fibromyalgia often appears in families, suggesting that certain inherited traits might make some people more prone to developing the condition. This could involve specific gene variations that increase the risk.

  • Infections: Some illnesses might trigger or worsen fibromyalgia. This could be because infections can affect the nervous system, making the brain more sensitive to pain.

  • Physical or Emotional Trauma: A significant physical event, like a car accident, or prolonged stress can sometimes lead to fibromyalgia. The stress or injury may cause the nervous system to become more easily activated and sensitive, resulting in the pain response becoming amplified.

In short, the changes in the brain and nervous system in people with fibromyalgia are likely complex and influenced by a combination of factors, including genetics, infections, and stressful life events.

Risk factors

Fibromyalgia is a condition that can cause widespread pain and other symptoms. Several things might increase your chances of getting it.

  • Gender: Women are diagnosed with fibromyalgia more often than men. Doctors don't fully understand why this is the case, but it's a known factor.

  • Family history: If a close relative, like a parent or sibling, has fibromyalgia, you might have a higher chance of developing it yourself. This suggests a possible genetic link, meaning some people might be more predisposed to the condition due to their genes.

  • Existing health conditions: Having other diseases, such as osteoarthritis, rheumatoid arthritis, or lupus, could make you more vulnerable to developing fibromyalgia. These conditions often share overlapping symptoms or involve similar inflammatory processes, potentially increasing the risk. It's important to note that having these conditions doesn't guarantee you'll get fibromyalgia, but it does raise the possibility.

Complications

Fibromyalgia can make daily life tough. The pain, tiredness, and trouble sleeping it causes can make it hard to do things at home or work. It can also be frustrating to deal with a condition that's sometimes not fully understood. This frustration can lead to feelings of sadness (depression) and worry about health (health anxiety).

Diagnosis

Previously, doctors used to check 18 specific spots on a person's body to see if they were painful when pressed. This was part of the process for diagnosing fibromyalgia. But new guidelines from the American College of Rheumatology have changed this.

Now, the key factor for diagnosing fibromyalgia is widespread pain all over the body, lasting for at least three months. To be considered for a fibromyalgia diagnosis, you need to have pain in at least four out of these five areas:

  • Left upper body: This includes your shoulder, arm, or jaw.
  • Right upper body: This includes your shoulder, arm, or jaw.
  • Left lower body: This includes your hip, buttock, or leg.
  • Right lower body: This includes your hip, buttock, or leg.
  • Middle body (axial): This includes your neck, back, chest, or abdomen.

The doctor will likely want to make sure it's not something else causing your pain. This might involve checking for other conditions with similar symptoms. Blood tests are often used to rule out other possibilities. These might include:

  • Complete blood count: This test looks at the different types of cells in your blood.
  • Erythrocyte sedimentation rate (ESR): This measures how quickly red blood cells settle in a sample of blood. It can be a sign of inflammation.
  • Cyclic citrullinated peptide (CCP) test: This test can help identify rheumatoid arthritis.
  • Rheumatoid factor: Another test that helps in identifying rheumatoid arthritis.
  • Thyroid function tests: These tests check the function of your thyroid gland, which can sometimes cause pain.
  • Anti-nuclear antibody (ANA) test: This can help identify autoimmune conditions.
  • Celiac serology: This test helps determine if you have celiac disease, which can cause various symptoms.
  • Vitamin D level: Low vitamin D levels can sometimes cause pain and fatigue.

If there's a possibility of sleep apnea, your doctor might recommend an overnight sleep study to check for this.

Treatment

Fibromyalgia treatment typically combines medication and self-care to lessen symptoms and improve overall well-being. There's no single cure-all, but a combination of approaches often helps.

To manage fibromyalgia pain and sleep problems, doctors might prescribe various medications:

  • Pain Relievers: Over-the-counter pain relievers like acetaminophen (Tylenol), ibuprofen (Advil), or naproxen (Aleve) can sometimes help. Stronger opioid pain medications are generally not recommended for fibromyalgia because they can cause serious side effects, including addiction, and may actually worsen pain in the long run.

  • Mood Stabilizers (Antidepressants): Certain antidepressants, such as duloxetine (Cymbalta) and milnacipran (Savella), can help reduce pain and fatigue. Doctors might also prescribe amitriptyline or cyclobenzaprine, a muscle relaxant, to improve sleep. These medications help regulate the nervous system's response to pain signals.

  • Anti-Seizure Medications: Drugs used to treat epilepsy can sometimes help manage specific types of fibromyalgia pain. Gabapentin (Neurontin) and pregabalin (Lyrica) are examples. Pregabalin was the first medication specifically approved by the U.S. Food and Drug Administration (FDA) to treat fibromyalgia.

Beyond medication, various therapies can significantly improve quality of life:

  • Physical Therapy: A physical therapist can guide you in exercises to build strength, flexibility, and endurance. Water-based exercises, in particular, can often be easier and less stressful on the body.

  • Occupational Therapy: An occupational therapist helps you modify your work environment or daily routines to reduce stress on your body. This might involve adjusting your workstation, finding ways to perform tasks more gently, or recommending assistive devices.

  • Counseling/Therapy: Talking to a counselor or therapist can help you build confidence, manage stress, and develop coping strategies for dealing with the challenges of fibromyalgia. This can be extremely beneficial in improving overall well-being.

These therapies work together to address the various ways fibromyalgia affects a person's life. Finding the right combination of treatments takes time and collaboration with your doctor.

Self-care

Taking care of yourself is very important for managing fibromyalgia.

Managing Stress: Fibromyalgia often involves a lot of stress. Make a plan to avoid or limit things that tire you out, both physically and emotionally. Set aside time each day for relaxation. This might include learning how to say no to requests that will over-burden you, without feeling guilty. However, try not to change your routine completely. People who stop working or stop doing activities often feel worse than those who keep some level of activity. Try relaxation techniques like deep breathing or meditation to help manage stress.

Getting Enough Sleep: Feeling tired is a common part of fibromyalgia. Getting good quality sleep is crucial. Make sure you get enough sleep, and try to go to bed and wake up around the same time each day. Also, limit naps during the day.

Gentle Exercise: Exercise can sometimes make fibromyalgia pain worse at first. But starting slowly and exercising regularly often helps reduce symptoms over time. Good exercises include walking, swimming, biking, and water aerobics. A physical therapist can create a personalized exercise plan for you, tailored to your needs. Stretching, maintaining good posture, and relaxation exercises are also beneficial.

Managing Your Energy Levels: Keep your daily activities consistent. If you do too much on good days, you might have more bad days. "Moderation" means not pushing yourself too hard on good days, but also not limiting yourself too much on days when symptoms are worse. It's about finding a balance that works for you.

Healthy Habits: Eating nutritious foods, avoiding tobacco, and limiting caffeine intake are all part of a healthy lifestyle. Also, make time each day for something enjoyable and fulfilling. This could be anything from reading a book to spending time in nature. These activities can contribute to your overall well-being and help manage your fibromyalgia.

Preparing for your appointment

Many people with fibromyalgia see several doctors before getting a diagnosis. This is because the symptoms of fibromyalgia can be similar to those of other conditions. Your family doctor might send you to a specialist, like a rheumatologist, who is skilled in treating arthritis and similar problems.

Before your appointment, it's helpful to prepare. Make a list of important information to share with your doctor. This list could include:

  • Detailed descriptions of your symptoms: Write down exactly what you're experiencing, when it happens, and how often. For example, "aching pain in my lower back, every day, starting around 3 pm." The more detail you provide, the better your doctor can understand your situation.
  • Past medical history: List any illnesses or injuries you've had. This includes everything from colds to major surgeries.
  • Family medical history: Note any health problems that run in your family, like arthritis, autoimmune diseases, or mental health conditions. Knowing if these conditions are present in your family can be helpful for your doctor.
  • Current medications and supplements: Write down all the medicines and supplements you take, including vitamins, herbs, and over-the-counter drugs. This helps your doctor understand if anything might be interacting with other treatments.
  • Questions for the doctor: Prepare a list of questions you have about your symptoms, possible treatments, or anything else you're unsure about.

During your appointment, your doctor will likely perform a physical exam. They'll also ask you about your sleep patterns, mood (if you're feeling depressed or anxious), and any other relevant factors.

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Disclaimer: August is a health information platform and its responses don't constitute medical advise. Always consult with a licenced medical professional near you before making any changes.

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